Remote participatory research has logistical benefits, but presents scientific and ethical challenges

Ethical and Logistical Challenges of Conducting Research with Hospice and Palliative Care Populations

Research in palliative care and hospice populations is important for improving quality of care, quality of life, and provider understanding of individuals at the end of life. However, this research involves many potential challenges. This thesis seeks to inform and assist researchers working with hospice and palliative care patients by presenting an exhaustive review of the published literature...

Ethical and logistical considerations of multicenter parental bereavement research.

BACKGROUND Multicenter research has the potential to recruit participants with diverse racial, ethnic, and geographic backgrounds and is essential for understanding heterogeneity in bereavement. The National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network (CPCCRN) is a multicenter network charged with conducting research on the pathophysiol...

Youth researching youth: benefits, limitations and ethical considerations within a participatory research process

OBJECTIVES To examine the benefits, limitations and ethical issues associated with conducting participatory research on tobacco use using youth to research other youth. STUDY DESIGN Community-based participatory research. METHODS Research on tobacco use was conducted with students in the K'àlemì Dene School and Kaw Tay Whee School in the Northwest Territories, Canada, using PhotoVoice. The ...

He's ethical but has bad taste....

Ethical challenges in stroke research.

BACKGROUND Ethical issues are a critical consideration in the design and conduct of clinical research. SUMMARY OF REVIEW A number of completed trials of proposed stroke treatments raise classical ethical issues in challenging ways. The combination of acutely ill and vulnerable patients, the use of potentially toxic drugs, and very short time frames for decision making and drug administration ...